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Genetic Justice Must Track Genetic Complexity - by Colin Farrelly
Djiezes
follow
1
3-26-2007 10:56 AM
731 views
tags:
gene
,
genetics
,
genome
,
justice
,
rawls
,
ethics
,
morality
,
policy
,
technology
,
biology
,
farrelly
,
pdf
,
paper
,
publication
,
literature
,
equality
,
regulation
,
politics
,
health
,
healthcare
,
resource
Djiezes
says:
Haven't read
the paper
yet, just this abstract.
Sounds interesting.
There seem to be other interesting papers @ this source like:
“Deliberative Democracy and Nanotechnology”
“Preparing For Our Enhanced Future”
"Justice in the Genetically Transformed Society"
"The Genetic Difference Principle"
“Genes and Equality”
“Distributive Justice and Genetics”
“Genes and Social Justice: A Rawslian Reply to Moore”
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<div style="margin: 12px 0px; font-family: arial; color: #333333; background: #ffffff; border: solid 4px #e5e5e5; width: 100%; clear: left;"><div class="CM_CTB_Content_Wrap" style="margin: 0px; padding: 0px;background-color: #ffffff;"><div style="border-bottom: solid 1px #dcdcdc; white-space: nowrap; margin-bottom: 8px; background-color: #eeeeee ;background-image: url(http://www.clipmarks.com/images/source-bg.gif); background-repeat: repeat-x; height: 24px; line-height: 24px; vertical-align: middle; padding-bottom: 4px; color: #666666; font-size: 10px;" ><a href="http://clipmarks.com/clip-to-blog/" title="see clips that are hot right now"><img src="http://content.clipmarks.com/blog_embed/e99f8141-637a-4b0a-96a0-cd5bce11c4b4/C419C47E-81FF-4E58-AFD8-27DF10847F76/" alt="" width="19" height="19" border="0" style="vertical-align: middle; margin: 0px 4px; display: inline; border: none; float:none;" /></a>clipped from <a title="http://politicalscience.uwaterloo.ca/Farrelly/prof-farrellyworkinprogress.htm" href="http://politicalscience.uwaterloo.ca/Farrelly/prof-farrellyworkinprogress.htm" style="font-size: 11px;">politicalscience.uwaterloo.ca</a></div><blockquote style="text-align: left; padding: 0px 8px; margin: 4px 0px 8px 0px; background: transparent; border: none;" cite="http://politicalscience.uwaterloo.ca/Farrelly/prof-farrellyworkinprogress.htm">Colin Farrelly</blockquote><div style="height: 2px; font-size: 2px; background: #dcdcdc; border-bottom: solid 1px #f5f5f5; margin: 2px 4px;"></div><blockquote style="text-align: left; padding: 0px 8px; margin: 4px 0px 8px 0px; background: transparent; border: none;" cite="http://politicalscience.uwaterloo.ca/Farrelly/prof-farrellyworkinprogress.htm"><STRONG>Forthcoming/ Recently Published Articles:</STRONG></blockquote><div style="height: 2px; font-size: 2px; background: #dcdcdc; border-bottom: solid 1px #f5f5f5; margin: 2px 4px;"></div><blockquote style="text-align: left; padding: 0px 8px; margin: 4px 0px 8px 0px; background: transparent; border: none;" cite="http://politicalscience.uwaterloo.ca/Farrelly/prof-farrellyworkinprogress.htm"><A href="http://www.politics.ox.ac.uk/research/working_papers/SJ005_final.pdf">“Genetic Justice Must Track Genetic Complexity”</A> (forthcoming) <EM>Cambridge Quarterly of Healthcare Ethics</EM>. </blockquote><div style="height: 2px; font-size: 2px; background: #dcdcdc; border-bottom: solid 1px #f5f5f5; margin: 2px 4px;"></div><blockquote style="text-align: left; padding: 0px 8px; margin: 4px 0px 8px 0px; background: transparent; border: none;" cite="http://politicalscience.uwaterloo.ca/Farrelly/prof-farrellyworkinprogress.htm">What values and principles should inform the regulation of new human genetic technologies (e.g. gene therapy)? To adequately answer this question we need an account of <EM>genetic justice</EM>. That is, an account of what constitutes a fair distribution of genetic endowments that influence our expected life-time acquisition of natural primary goods (health and vigor, intelligence and imagination). These are goods that every rational person has an interest in (Rawls, 1971). The decisions we now make regarding the regulation of human genetic technologies will determine how quickly and effectively these benefits are brought into existence, as well as who receives these benefits.</blockquote><div style="height: 2px; font-size: 2px; background: #dcdcdc; border-bottom: solid 1px #f5f5f5; margin: 2px 4px;"></div><blockquote style="text-align: left; padding: 0px 8px; margin: 4px 0px 8px 0px; background: transparent; border: none;" cite="http://politicalscience.uwaterloo.ca/Farrelly/prof-farrellyworkinprogress.htm">a necessary condition of a defensible account of genetic justice is that it must track <EM>genetic complexity</EM>.</blockquote></div><div style="margin: 0px 6px 6px 4px;"><table style="font-size: 11px;border-spacing: 0px;padding: 0px;" cellpadding="0" cellspacing="0" width="100%"><tr><td style="background:transparent;border-width:0px;padding:0px;"> </td><td align="right" style="background:transparent;border-width:0px;padding:0px;width:107px" width="107"><a href="http://clipmarks.com/share/C419C47E-81FF-4E58-AFD8-27DF10847F76/blog/" title="blog or email this clip"><img src="http://content7.clipmarks.com/images/c2b-foot.png" border="0" alt="blog it" width="107" height="17" style="border-width:0px;padding:0px;margin:0px;" /></a></td></tr></table></div></div>
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